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Tuesday, July 8th, 2008
9:44 am - Positive Self Talk

ms_tiggywinkle
 Hello everyone who still may be here!

Everyday activities are becoming more difficult because of muscle pain and hand edema for me. So for the first time in my life I am become less physical. My question is what do you say to yourself on bad days and when negative intrusive thoughts about the future of your mobility threaten to overwhelm? Some days I get tired just thinking of working through my soreness to do my housework, so I'd appreciate some suggestions on motivating myself to "keep going."

current mood: blah

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Monday, May 26th, 2008
3:59 pm

mactavish
I need a mobility scooter that folds and/or comes apart and that I can handle myself and haul in my car's trunk, rather than on a rack on the back of the car.

I've had a Featherlite from No Boundaries for four years, and it's finally wearing out. I like it as a scooter, it's easy to haul and to ride, but it's had electrical problems from day one. I spent its first few months alternately riding it, hauling it to warranty service centers, picking it up unfixed from said centers when No Boundaries wouldn't pay as much as the fixing places required for servicing (one said, "What they're offering us wouldn't cover what we'd charge to open it up and look inside"), and shipping the motor end to/from No Boundaries. It's worked well for three years now, until recently, when we've had to replace front wheel-motor screws. But this weekend, in the middle of Baycon, it got a short somewhere in the electronics, and just won't go.

So I'm shopping for a new, or new/used one, but I'd rather have one with a good reputation for reliability. And again, it also needs to be something I can manage alone. No part should weigh more than about 30 lbs, and it needs to be able to fit in the trunk of a big-trunked car.

I'd love your recommendations. Are the No Boundaries Featherlites made more recently more reliable than they were in 2004? Are there better brands? Do you know anything about the Buzzaround?
http://ucanhealth.com/product_details.php?pid=GolGB-106_Lightweight_Electric_Scooter

How about the Superlight 3?
http://store.a2bscooters.com/b3elsc.html
http://www.comforthouse.com/scooters.html

If you don't know about specific models, can you point me to an advice/review website that might have information?

Thanks. :)

Mary

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Sunday, February 10th, 2008
5:58 pm

mactavish
As much as I like to cook from local foods, and from scratch, on my gimpier days, I'm really fond of Trader Joe's -- meat came marinated and cut up, I just needed to cook it; corn tortillas; can of black beans, some green onions; salsa; and pre-grated cheese blend, and yo, I've got tostadas.

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Friday, December 7th, 2007
10:07 am

mactavish
Woot.com is briefly selling bottom-end mobility scooters for $400. Won't last. They never do.

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Monday, July 16th, 2007
4:40 pm - learning to sew with rheumatoid arthritis

mactavish
For sewing, some folks have suggested electric scissors for me, and some have suggested a rotary cutter.

My primary issue is that even when my RA isn't flaring, too much cutting makes my wrists swell badly, and I develop fluid cysts on them. My partner says he'll "do all the cutting," but I have the feeling that'll slow down my learning.

I like the idea of electric scissors, but wonder if they might be too vibratey.

Suggestions?

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Saturday, June 3rd, 2006
7:08 pm - online typing/html jobs?

dreamerdark
I was thinking online jobs like data entry or even html/css based website design would work well for me. I have fast typeing speed and know these codes but do these jobs really exist? Has anyone ever found a real job offering of this? Do any of them hire people without job experience, I'm self taught.


thanks

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Monday, June 27th, 2005
12:28 am - Anybody here? Request for scooter input

technomom
I've finally decided that I am going to ask my doctor to prescribe a scooter. I don't think that part is going to be too difficult.

The hard part, though, is which one? If you have one, did your doctor specify a model, ask you what you wanted, what? Is there anything you'd change about the model you got? Pointers?

Thanks!

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Tuesday, November 16th, 2004
8:36 pm

mactavish
Wrist Splints Helpful for Inflammatory Arthritis
Mon Nov 15, 2004 03:24 PM ET
NEW YORK (Reuters Health) - For people with inflammatory arthritis affecting the wrist, using a wrist splint can reduce pain and improve strength, Canadian researchers have shown.
Previous reports suggested that wrist splints may improve symptoms but at the risk of reducing dexterity and the performance of some functional tasks, the authors explain in the medical journal Arthritis & Rheumatism.


For the past two or three years, I've been using rigid wrist splints whenever my wrists get even a little puffy or aggravated, or when I know I'll need to use my hands a lot. They make a huge difference for me.

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Saturday, November 13th, 2004
8:10 am

mactavish
Now that my hands aren't awful, I find myself wanting to learn needlepoint again. I can knit some and crochet some, but both of those seem like they'd cause my wrists to inflame.

Last year around this time, when my hands weren't in too-bad shape, I did a lot of sewing at once, and ended up needing cortisone injections in my wrists afterwards.

I don't want that again, but I want to make beautiful things.

How do people with rheumatoid arthritis in the fingers and hands do needlepoint without aggravating it?

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Sunday, August 8th, 2004
1:05 pm - Hardest Chore?

_paegan_
Thank goodness Someone started this community. *L* I'm constantly trying to find ways of doing various tasks with the least expenditure. I have friends that wonder why it can take me ALL DAY to do a few loads of laundry!

So, what is the most challanging chore for you?

Mine is bathroom cleaning - there's a lot of bending over and balancing involved. Some of the new products at the store are starting to make it easier - but I'm still encountering a lot of harsh chemicals (skin's a little sensitive - don't like my fingers bleeding after housekeeping).

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Saturday, July 17th, 2004
1:07 pm - I am totally taking it easy.

invisibelle
Hi everybody, I'm new. I originally made a separate LJ account for the FMS/CFS related communities I wanted to be in, because I was ashamed and didn't want it to show up on my "real" profile page. I'm over that, now, though. I'm growing up. :)

What I came to post about, though, is that I'm moving. It's 25 miles away from where I live now, but only 5 minutes from where I work every day. My crazy sense of independence is compelling me to try to do most of it on my own, so my solution ended up being this:

-Pay all of July rent in old apartment
-Pay 3 weeks of July rent in new apartment
-Spend 3 weeks taking a few boxes every day after work.

Most people whom I've told this plan to have laughed at me, but they don't know I have FMS.
I'm not going to lie, it is still SO tiring. But it beats killing myself trying to move everything in a couple of days in this Texas summer heat!

Has anyone else ever done this? Am I crazy for paying an extra $480 to be able to take it easy?

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Thursday, April 8th, 2004
2:27 pm - Are you a disabled student?

technomom
I made yet another new community - disabledstudent.

Are you a person with a disability (physical or otherwise) who is also enrolled in college/university? Are you considering enrolling? This community is for you!

This is the place to talk about documenting disabilities, getting accommodations, what works best for you, financial aid, educating teachers and classmates, etc.

If you just want to blow off steam, please do so in dot_gimp_snark. Here, we want to exchange useful information and support each other .

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Sunday, March 21st, 2004
4:00 pm

idlechic
has anyone ever tried using one of those little sandwich grill things (the ones that make 2 little triangle sandwiches out of each slice of bread) with a tortilla instead of bread? i'm wondering if it works at all or if it'll end up making a huge mess.

current mood: creative

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Friday, March 19th, 2004
11:19 am - what kitchen tool or device could you NOT live without?

geekdiva
I have a wonderful iced tea maker. Every time I use it, I send thanks to my grandmother, who bought it for me. I'll try to dig up the URL for it later.

I also have that can opener that travels around the lid of the can. Beautiful! Again, I'll dig up the URL and post it here later.

I'm so disabled at this point that my body is very choosy about what it lets me use. I've got to start eating healthier, though, so I'm trying to figure out what might help me.

In particular, I want to cook fish on my good days and hard-boiled eggs to store for my bad days. Any suggestions? And what helps you (even though it might be out of my league at the moment)?

How easy is it to clean a George Forman grill?

current mood: 'tis a gift to be simple, 'tis a gift to be free...

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Friday, March 5th, 2004
6:57 am

mactavish
I'm looking for a shampoo/conditioner dispenser that can be moved/re-used easily (I'm a renter, and don't want to have to buy a new one, or have a hard time removing mounting hardware, if I move) and that has buttons that are really easy to push for someone with sore wrists and fingers.

I'm thinking of something like this or this, for example.

Can you suggest a type or brand that would work best? I don't want to spend the money and be unable to operate the thing.

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Monday, February 16th, 2004
5:56 pm

mactavish
My goal is to have all my laundry clean, folded or hung, and put away by bedtime tonight. I think I can honestly say that if I acheive this goal, it will be for the first time in at least three years.

I have a hard time folding, somehow the fiddliness of it causes a lot of pain in the small bones of my hands -- carpals and metacarpals, and my first knuckles. But someone's got to do it.

So I'm doing half a load, resting, half a load, watching TV, half a load, checking LJ and mail . . .

Wow, this show about the 80s on VH1 is absolutely content-free! How could I have missed it up until now?

When I'm done, I'm going to have lots of extras for the big-clothes swap in Oakland next week, and perhaps for ebay.

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Thursday, June 26th, 2003
6:02 pm

mactavish
quizzes:
casey, not meCollapse )
naive is meCollapse )
last but not leastCollapse )

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Tuesday, June 24th, 2003
11:33 am - Pet hair & vaccuuming...

elfwench
Anyone have a problem with pet hair clogging the vaccuum? I know I do and that only adds to the chore by having to stop and unclog the vac. Well, my hubby got a good idea. He went to the garden department and got a plastic rake, with a normal handle length but a small plastic rake head...the fan kind, not the rectangular kind. And now I rake up the pet hair before I vaccuum. This makes vaccuuming take so much less time because you don't have to stop to unclog the vac, plus it saves on bending because you don't have to bend down and pick it all up by hand!

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Saturday, May 3rd, 2003
11:28 am - what cooking device actually makes your life easier...

geekdiva
...without adding a layer of complications? For example, crockpots are often mentioned as an easy way to cook, but are they difficult to clean?

Personally, I like my Neuro Fuzzy rice cooker by Zojirushi, but for a long time I thought it was difficult to clean. One day ealier this year, I realized I could put water in the bowl, put it in the rice cooker, and voila! The whole mess became wipe-up-able. Once I added white wine vinegar to the water, to make sure the bowl got as clean as possible.

Any experience with crockpots out there? Is one type or brand better than another? Thanks!

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Sunday, April 27th, 2003
10:33 am

mactavish
What other chronic pain or illness communities are you in? I belong to
arthritis
chronic_pain
ouchygrumpy
chronic_health
no_pity
rheumatoid
takingiteasy
thyroid

Which ones are you in? Are there any you'd especially recommend? What other communities are you in that aren't specifically chronic pain or chronic illness related, but that you think would be a good place with folks who have pain or health issues to hang out?

(cross-posted to mactavish and the above-listed communities)

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